Monday, October 25th, 2021 I came to the ED knowing I would probably be admitted. This disease is complex, and it’s easier to get treatment as an inpatient where I can be watched more carefully. For those of you who are new here or just need a reminder, I have Myasthenia gravis, a rare autoimmune… Continue reading The Quiet of a Hospital Room
Category: Chronic Illness
Why Social Media is a Huge Part of My Life
A lot of people don’t understand why I choose to post my everyday life on social media. They don’t understand why I share about the good and bad – why I don’t just keep that to myself. I first started posting regularly about my life in 2017, when I was first diagnosed with Myasthenia gravis.… Continue reading Why Social Media is a Huge Part of My Life
My Mental Health Roller Coaster
As you can imagine, my mental health is something I battle during my flares of Myasthenia gravis. But my anxiety and depression started way before then. I was always the worrier in my family. Some days, worrying was all I could do. I grew up in an amazing home with loving parents where I could… Continue reading My Mental Health Roller Coaster
My Treatment Journey
Because this month is Myasthenia Gravis Awareness Month, and it marks three years since I was diagnosed, I thought it would be fitting to go through my treatment journey this far. In June 2017, when I was first diagnosed, my neurologist put me on a pretty standard treatment for Myasthenia, including pyridostigmine (AKA mestinon), prednisone,… Continue reading My Treatment Journey
Our Story: Dating to Diagnosis
Preston and I officially met senior year of high school in AP Spanish. Preston spent most of his time being active in sports including football and soccer, while I was involved in cheerleading, dance and gymnastics. We quickly learned we had a lot in common - including working at the local YMCA. Preston taught swim… Continue reading Our Story: Dating to Diagnosis
Chronically Caring Blog 